Statewide and Nationwide
Health Condition and Care Advocacy
Organizations that are dedicated to protecting and improving the quality and affordability of health and long term care for all individuals and advocating for changes in the health care system that will achieve these goals; or which advocate more broadly for legislation and other measures that have a positive impact on public health.
Rare Disease Health Information and Resource Guide
National Organization for Rare Disorders, Inc. (NORD)
55 Kenosia Avenue, P O Box 1968, Danbury, CT, 06813
Main:
(203) 744-0100
Toll Free:
(800) 999-6673
Fax:
(203) 798-2291
Women's Health Advocacy
National Women's Health Network
1413 K Street NW 4th Floor, Washington, DC, 20005
Main:
(202) 682-2640
Fax:
(202) 682-2648
Patient and Physician Advocacy
Norfolk Academy of Medicine, Inc.
6161 Kempsville Circle, Smithfield Bldg. #325A, Norfolk, VA, 23502
Main:
(757) 466-8883
Toll Free:
(877) 926-3336
Fax:
(757) 466-8887
Health Conditions
PAN Foundation
805 15th Street, NW, Suite 500, Washington, DC, 20005
Main:
(866) 316-7263
Toll Free:
(800) 394-0161
Spinal Cord Injury (SCI) Advocacy
Paralyzed Veterans of America
801 Eighteenth Street, NW, Washington, DC, 20006
Main:
(800) 424-8200
Toll Free:
(866) 734-0857
Immunization Advocacy
Project Immunize Virginia (PIV)
855 W Brambleton Ave, EV Williams Hall, Norfolk, VA, 23510
Main:
(757) 668-6488
Fax:
(757) 668-6475
Spinal Cord Injury Advocacy
Spinal Cord Injury Network, Metro Washington Area
14 Wolf Drive, Silver Spring, MD, 20904
Main:
(703) 525-3268
Health Care Insurance Ombudsman
State Corporation Commission, Consumers
1300 East Main Street, Richmond, VA, 23218
Main:
(804) 371-9032
Toll Free:
(877) 310-6560
Fax:
(804) 371-9944
Brain Tumor Advocacy
The Brain Tumor Foundation
1350 Avenue of the Americas, Suite 1200, New York, NY, 10019
Main:
(212) 265-2401
Fax:
(212) 489-0203
Cerebral Palsy Advocacy
United Cerebral Palsy Association National
1825 K Street NW Suite 600, Washington, DC, 20006
Main:
(202) 776-0406
Fax:
(202) 776-0414
Ostomy Advocacy and Information
United Ostomy Associations of America
P O Box 512, Northfield, MN, 55057
Main:
(703) 802-3457
Toll Free:
(800) 826-0826
Minority Health Resource Center
United States Department of Health and Human Services
P O Box 37337, Washington, DC, 20013
Main:
(240) 253-2882
Toll Free:
(800) 444-6472
Fax:
(201) 251-2160
Health Education and Health Care Advocacy
Virginia Area Health Education Centers (AHEC)
1010 East Marshall Street, Suite B1, P.O. Box 980535, Richmond, VA, 23298
Main:
(804) 828-7639
Fax:
(804) 828-5160
Home Health Care Advocacy
Virginia Association for Home Care and Hospice
P O Box 2103, Midlothian, VA, 23113
Main:
(804) 285-8636
Toll Free:
(800) 755-8636
Fax:
(804) 288-3303
Hospice Advocacy
Virginia Association for Hospices and Palliative Care
P O Box 70025, Richmond, VA, 23255
Main:
(804) 740-1344
Fax:
(775) 599-2677
Long Term Care Information and Advocacy
Virginia Health Care Association
2112 West Laburnum Avenue Suite 206, Richmond, VA, 23227
Main:
(804) 353-9101
Fax:
(804) 353-3098
Advocacy for Hemophilia and Inherited Bleeding Disorders
Virginia Hemophilia Foundation
410 N. Ridge Rd. Suite 215, Richmond, VA, 23229
Main:
(804) 740-8643
Toll Free:
(800) 266-8438
Healthcare Advocacy
Virginia Hospital and Healthcare Association
4200 Innslake Drive, Suite 203, Glen Allen, VA, 23060
Main:
(804) 965-1209
Fax:
(804) 965-0475
Women's Health Advocacy and Information
Women's Health Virginia
1924 Arlington Boulevard, Suite 203, Charlottesville, VA, 22903
Main:
(434) 220-4500
Fax:
(434) 220-4545